In South Africa, where lack of medical infrastructure and research and support is a challenge, Rare Diseases South Africa is encouraging the community to ‘know your genealogy’ and ‘research your family tree’.
On 28 February 2018, Rare Diseases South Africa (RDSA) will launch its 11th annual Rare Disease Day. This year’s theme is ‘research’ which aims to improve research efforts, advocating for timely and accurate diagnosis and intervention as well as early detection, thereby enhancing patients’ quality of life through correct medical treatment. The aim is to improve the general public’s knowledge of rare diseases, while encouraging researchers and decision makers to address the needs of those living with these conditions.
During the course of February, RDSA is initiating an interactive online campaign to raise awareness of rare diseases and show support for the rare disease community. Followers can ‘Show you Care for Rare’: #ShowYourRare, by painting their face and taking a selfie with friends, family or colleagues and posting the image on any social media platform. In the run up to Rare Disease Day, you can take part in a 28-day photo challenge on Instagram to help raise awareness of rare diseases by posting one photo a day in different locations using homemade stickers, posters or banners pledging support and creating awareness.
In addition, you can help raise funds by donating R10, or purchasing the ‘Jeans for Genes’ sticker and wearing your favourite jeans on Friday, 28 February 2018. Rare Disease Day is an opportunity for you to be part of a global call on policy makers, researchers, companies and healthcare professionals to increasingly and effectively involve patients in rare disease research. For more information visit www.rarediseases.co.za.
SOURCE: ECLIPSE PUBLIC RELATIONS